The Kylie Jane Long Foundation raise money to enhance the lives of local pediatric patients and their families by
providing assistance, improving physical spaces, educating parents and medical staffs, and raising awareness of rare pediatric cancers.
Ways that we can help:
- Care Bags
- Wish Requests
- CarePage Setup and Support
- Family Grants
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Request a care bag
After spending time in the hospital, we learned what items hospitalized
families need but won’t leave their child’s side to go to the store to get. To
help families who are in this situation, we developed Kylie Care Kits.
Kylie Care Kits Include:
A cozy blanket, long distance calling cards, toothpaste,
toothbrush, shampoo, lotion, flip flops (for the showers),
deodorant, lip balm, laundry supplies, tissues, soap, gum,
plastic bags that seal (to hold the toiletries), disposable
cameras, Purell sanitizing lotion, a journal, and more.
You can request a carebag by sending us an email at info@kyliejanelong.org or sending us a message through our contact page.
Send us a wish list
Let us know what you need to make you time more comfortable. We hope that the items in our carebags are as helpful to you as we thought they would be, but if you
have a special request or need let us know and we will see what we can do to help.
You can view a sample wish list of some of the more popular items we collect to supply to families.
If you have a special request you can send us an email at info@kyliejanelong.org or sending us a message through our contact page.
Let us help you setup your Carepages so you can share your story
The CarePages websites are free patient blogs that connect friends and family during a health challenge.
CarePages make it possible for a family to share your story and build your support circle with out leaving the patients side. If you are not ready to share your story CarePages is a great place to look for stories of inspiration.
CarePages is full of real life stores to give you inspiration and courage for getting through and moving forward.
View Kylies CarePage: www.carepages.com, page name = KylieJaneLong]
If you want help setting up your personal CarePage let us know. Jason and Elizabeth shared their experiences with Kylies
treatment through the use of CarePages while they where in the PICU. Elizabeth and Jason realized early on the importance
of making caring visible to the world and the importance of comforting and changing lives. CarePages is full of stories of inspiration and everyday heroes.
Set up your own care page where you and your child can chronicle your journey. If you are ready to share your experiences and build a network of emotional support click the link below.
Create a Carepage
Request a family grant
Through the Family Grant Program we provide reimbursement financial assistance to families who have a critically or chronically ill child
in the hospital. We recognize how important it is to be present with your child during a hospital stay. Staying with your
child provides many benefits. You are able to be an active member of your child’s healthcare team, you provide
insight about your child that only you know, and you are the one constant person your child can rely on as an
advocate and a source of comfort. We also understand there are many financial hurdles standing in the way of a
family member being present at the hospital. We are here to try to alleviate those financial hurdles standing
between you and your child.
We assist with expenses related to hospital stays including parking, food, and travel. We may also assist with other
household expenses holding you back from being with your child including child care for siblings and household
bills such as necessary utilities, rent, or home insurance. Other financial hardships you incur may be considered
with a detailed explanation of what the expense is and why it is needed.
The Kylie Jane Long Foundation is a charitable organization that depends on its generous donors for support and
continuation. We make considerations for aid based on our limited budget. The guidelines for our policies are as
follows:
You will not be denied aid because of your race, religion, color, nationality, sex, or political affiliation. All
information provided to us will be used in confidence and used only in ways consistent with the reason it
was provided.
Application for Patient and Family Assistance
Please contact us if you have any questions about the family grant program or if their is any other way you think that we can help.
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